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By Colin Bailey | 07/3/2010
Apologies as we have not updated the site for a while but this year has been difficult.March 2nd - Tilly and Oliver lost their beloved grandad Keith.April  - Tilly went back to DC for the researc...
By Colin Bailey | 07/3/2010
Apologies as we have not updated the site for a while but this year has been difficult.March 2nd - Tilly and Oliver lost their beloved grandad Keith.April  - Tilly went back to DC for the researc...
By Colin Bailey | 01/30/2010
Apologies for the poor administration but this is due to the fact that Tilly has spent a lot of time at Great Ormond Street lately so Debra is stretched between Tilly & Oliver.  To add, I have sp...
By Colin Bailey | 01/30/2010
Apologies for the poor administration but this is due to the fact that Tilly has spent a lot of time at Great Ormond Street lately so Debra is stretched between Tilly & Oliver.  To add, I have sp...
By Colin Bailey | 01/30/2010
Apologies for the poor administration but this is due to the fact that Tilly has spent a lot of time at Great Ormond Street lately so Debra is stretched between Tilly & Oliver.  To add, I have sp...
By Colin Bailey | 01/30/2010
Apologies for the poor administration but this is due to the fact that Tilly has spent a lot of time at Great Ormond Street lately so Debra is stretched between Tilly & Oliver.  To add, I have sp...
By Colin Bailey | 10/26/2009
Tilly was 12 today and her wonderful friends and family helped to make for a special birthday weekend. Tilly's mum worked so hard to ensure that Tilly had a wonderful and happy time.We are so proud t...
By Colin Bailey | 10/7/2009
I have just had a call from Debra and Tilly, in the car on way back from GOSH, and heard Tilly whooping with delight!She has grown 3.5cms in the past 6 weeks, which is 30 times the rate she has worked...
By Colin Bailey | 09/3/2009
Following a period of a few concerns as to Tilly's well-being, a few drug changes have been made. In addition, we have been administering growth hormone in the hope that Tilly may grow although t...
By Colin Bailey | 07/29/2009
Tilly is doing ok and recently started growth hormone treatment.  We have been discussing for a long time and finally got the go ahead, which was Tilly's wish.  Another daily injection but s...
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