Blogs
Apologies as we have not updated the site for a while but this year has been difficult.March 2nd - Tilly and Oliver lost their beloved grandad Keith.April - Tilly went back to DC for the researc...
Apologies as we have not updated the site for a while but this year has been difficult.March 2nd - Tilly and Oliver lost their beloved grandad Keith.April - Tilly went back to DC for the researc...
Apologies for the poor administration but this is due to the fact that Tilly has spent a lot of time at Great Ormond Street lately so Debra is stretched between Tilly & Oliver. To add, I have sp...
Apologies for the poor administration but this is due to the fact that Tilly has spent a lot of time at Great Ormond Street lately so Debra is stretched between Tilly & Oliver. To add, I have sp...
Apologies for the poor administration but this is due to the fact that Tilly has spent a lot of time at Great Ormond Street lately so Debra is stretched between Tilly & Oliver. To add, I have sp...
Apologies for the poor administration but this is due to the fact that Tilly has spent a lot of time at Great Ormond Street lately so Debra is stretched between Tilly & Oliver. To add, I have sp...
Tilly was 12 today and her wonderful friends and family helped to make for a special birthday weekend.
Tilly's mum worked so hard to ensure that Tilly had a wonderful and happy time.We are so proud t...
I have just had a call from Debra and Tilly, in the car on way back from GOSH, and heard Tilly whooping with delight!She has grown 3.5cms in the past 6 weeks, which is 30 times the rate she has worked...
Following a period of a few concerns as to Tilly's well-being, a few drug changes have been made. In addition, we have been administering growth hormone in the hope that Tilly may grow although t...
Tilly is doing ok and recently started growth hormone treatment. We have been discussing for a long time and finally got the go ahead, which was Tilly's wish. Another daily injection but s...
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