Colin Bailey
Hi I'm Tilly's dad and glad you have visited our site. I'm absolutely astounded at the response and offers of help from all sorts of people from as far away as Australia!
Debbie, Oliver, myself and Tilly thank you all so much for the support and love you've shown.
View all blogs by Colin Bailey...
Tilly Unwell
Unfortunately I found Tilly last night shaking uncontrallaby in bed,
feeling cold in herself but hot to touch. Her temperature reached
40.4, even half an hour after being given Nurofen.
Debbie rushed
her to Basildon Hospital and she was admitted and various tests are
being carried out. We have open access to the hospital as they can
deal with general problems but not with complicated condition, CINCA.
We
have been told that it could be pneumonia or urinary infection and
await the results. She is very down and worrying about tests that need
to be done as she now fears needles and becomes hysterical. Hardly
surprising given how many times she has had canula's fitted and the
fact that she has to be injected in her thigh every day, which is
horrible to administer to your own child.
Fingers crossed for better news and will keep you updated.
Kind regards
Colin