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Colin Bailey
Hi I'm Tilly's dad and glad you have visited our site. I'm absolutely astounded at the response and offers of help from all sorts of people from as far away as Australia!

Debbie, Oliver, myself and Tilly thank you all so much for the support and love you've shown.
 

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Update
By Colin Bailey | Published  12/17/2006

Tilly has slowly deteriated in mobility over the past few months to the degree that she could not stand as her right hip was causing so much pain.  She was given pain relief which did not prove very effective so morphene was introduced which helped.  The following week Tilly has an MRI scan which showed large clouds of white mass which was considered to be inflamation and so a small operation was performed to inject steroids into the hip and samples were also taken for testing.

Tilly responded well and after a few days managed to stand again.  After daily physio and her blood results settling towards a normal level we were hoping to bring her home last Friday but unfortunately she begun spiking high tempretures and a urine infection has been detected.  Unfortunately she remains at Great Ormond Street and we are praying for a change so that we can at least get her home for Christmas.

Regards

Colin

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