The kidney specialist of Great Ormond Street called and spoke to us on Friday about our concern's.  He has agreed to discuss directly with the experts in the US to try and resolve.

Tilly had to to go to a local Hospital yesterday to have a blood test.  This was due to the fact that her brother, Oliver, came out in red spots which could be chicken pox.  This could be a huge problem for Tilly but, on this occasion, Tilly's antibody levels appear to be strong enough to fight it, which is very unusual.

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