I moved to Perth in Western Australia in September 2004 with my wife Julie and Scott, who was 4. Up until that time I had spent all my life living and working in the UK. I now own and run a Finance Brokers in Perth with my business partner Kate Thompson and have 17 staff, which makes for a very busy life.

However, that seems easy compared with the work and dedication that Colin and Debbie have had to endure with Tilly's condition.