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Colin Bailey
Hi I'm Tilly's dad and glad you have visited our site. I'm absolutely astounded at the response and offers of help from all sorts of people from as far away as Australia!

Debbie, Oliver, myself and Tilly thank you all so much for the support and love you've shown.
 

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Tilly's Progress
By Colin Bailey | Published  02/2/2007
Tilly had a few appointments at Great Ormond Street today.  She now has an infusion every month, via cannula in the arm, of Pamidronate.  The reason being that Pamidronate will hopefully help to build calcium in Tilly's bones.

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