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						<title><![CDATA[Tillys Appeal Fund - News]]></title>
						<link>http://www.tillysappealfund.com</link>
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					  <title><![CDATA[What a night!!!]]></title>
					  <link>http://www.tillysappealfund.com</link>
					  <description><![CDATA[
We sat 4-5 seats to the left of Simon Cowell and Oliver was next to Sinita, who chatted to him during the night and was lovely with him.&#160; Simon spotted Tilly as the judges came out at the beginning of the show and he acknowledged her waving to him.&#160; During the intervals Simon twice came over and talked, hugged and kissed Tilly.&#160; He is such a nice and genuine person, one in a million.During the show Dermott O'Leary came over to hug Tilly and to chat with her.&#160; He told her that Tilly had made his night and he was now happy.&#160; After the show Simon's staff escorted us through to the dressing room areas where we met Cheryl Cole, who was lovely and had pictures with Oliver, Tilly and ..........Me (sorry but).&#160; JLS spotted Tilly and made a huge fuss and posing for pictures with us all.&#160; We also met with the parents of JLS again and they were lovely with Tilly.Both Oliver and Tilly were fast asleep after about 10 minutes of being in the car and are now having very sweet dreams.Big thanks once again to Simon Cowell and his Team for another unforgettable experience xColinps - I will post pictures of the night at the end of the week.]]></description>
					  <author>Colin Bailey</author>
					  <pubDate>Sun, 01 Nov 2009 00:00:00 CDT</pubDate>
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					  <title><![CDATA[PLEASE READ - X FACTOR SHOW THIS SUNDAY]]></title>
					  <link>http://www.tillysappealfund.com</link>
					  <description><![CDATA[
Tilly's 12th birthday and JLS appearing on the X Factor this coming weekend prompted me to call Simon Cowells PA this week.&#160; I was asking a lot really, given that Simon and Max Clifford were so kind last year to arrange for such a wonderful evening for Tilly last year and the subsequent kind donation from Simon.&#160; Also, we are not the only cases and I know that both Simon and Max continuosly work hard for so many good causes but I am Tilly's dad and want good things for such a brave daughter.&#160; Tilly was at GOSH yesterday again, monthly infusion this time which she hates, and had a rough time.Simon's wonderful PA helped me to make Tilly's day, month, year by arranging not only for tickets for this Sundays live show but for Tilly to hopefully meet with JLS and Cheryl Cole!!!&#160; and I hope Simon as both Tilly and I think he is a wonderful man and want to thank him again.I cant tell you how happy Tilly is, she has not stopped texting me all day which has made me so happy for her.I hope to post a story and pictures after Sunday as it will be an unforgetable experience for Tilly, again!!!]]></description>
					  <author>Colin Bailey</author>
					  <pubDate>Thu, 29 Oct 2009 00:00:00 CDT</pubDate>
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					  <title><![CDATA[Genuine Friends - Please Read]]></title>
					  <link>http://www.tillysappealfund.com</link>
					  <description><![CDATA[My best friend at school, Damien Stevenson (see above), I had lost touch with some 15 years ago.&#160; He moved back to Bristol some 20 years ago and the last time, until recently, I saw him was at his wedding.Damien decided to search for me through Facebook about 6 months ago and we made contact.&#160; We had a lot to catch up on, Damien has a lovely wife and two wonderful sons of 13 &#38; 15.&#160; I obviously told him about Oliver and Tilly and he looked at the website to find out more.&#160; I went to stay with his family whilst on business in Bristol and we had a great time catching up and I could sense that he was touched by Tilly's difficult life.&#160; Damien called me tonight and informed me that he trained for 5 months and recently ran 13 miles in Bristol for Tilly's fund!&#160;&#160; Damien has not exercised for 15 years+ but was so touched by Tilly that he said 'I had to do something, especially given our friendship and for such an incredible child'.Damien and his family rallied round friends and colleagues and have helped to raise an amazing &#163;1100 for the fund!!!I am so grateful and blown away by Damien and his family for doing this for Tilly and I cannot thank you all enough.Love Colin ]]></description>
					  <author>Colin Bailey</author>
					  <pubDate>Fri, 25 Sep 2009 00:00:00 CDT</pubDate>
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					  <title><![CDATA[Tilly&#39;s School Friends Swimathon!!!]]></title>
					  <link>http://www.tillysappealfund.com</link>
					  <description><![CDATA[Wendy Neale very kindly arranged another succesful event to raise funds for Tilly's Appeal Fund recently.&#160; Wendy got together with a large number of parents and children at Mountnessing School and managed to raise a superb &#163;500!!!Our big thanks to all those that took part in swimming non-stop and getting sponsorship for Tilly.Kind regards Colin &#38; Debra]]></description>
					  <author>Colin Bailey</author>
					  <pubDate>Sun, 20 Sep 2009 00:00:00 CDT</pubDate>
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					  <title><![CDATA[Home Again!!!]]></title>
					  <link>http://www.tillysappealfund.com</link>
					  <description><![CDATA[We arrived home this morning following a month in Washington &#38; Virginia.&#160; Tilly had the 6 monthly research for the first week and a few potential issues transpired, which was worrying.&#160; The MRI showed fluid and narrowing around the brain and we had to meet with neuro surgeons to discuss.&#160; After reviewing the last 3 years of scans and the potential complications it was decided that surgery would not take place, much to our relief for Tilly!The surgery to remove the loose metal works in Tilly's leg had to be delayed due to an unusual urine infection, normally found in the blood.&#160; Tilly had surgery last Monday to remove a large rod, about 5 inches long and 1 inch thick, and screws.&#160; All appears to have gone well and Tilly insisted that she was not in pain less than 24 hours after surgery!&#160; She just wanted to get out of Hospital as quickly as possible, which is understandable...We arrive home this morning and she is doing well.]]></description>
					  <author>Colin Bailey</author>
					  <pubDate>Mon, 25 May 2009 00:00:00 CDT</pubDate>
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					  <title><![CDATA[Bad News ]]></title>
					  <link>http://www.tillysappealfund.com</link>
					  <description><![CDATA[I am sorry to have to report that our fears have been confirmed about Tilly's hips.&#160; On the left side some of the metal fixings have come loose and need removing.We are in talks with experts in London and the US and I think surgery will take place in April/May.&#160; This will probably mean a lengthy stay in the US again and we are obviously very upset for Tilly.&#160; Also the fund will be hit considerably, so the need to drive fundraising becomes a key aspect of our lives to ensure Tilly can get the help she so desparately needs.We have great friends that are actively raising funds at present and we will continue to look into other ways.We feel so sorry for Tilly to have to endure more operations but the need is so important, especially considering how brittle her bones are and the chances of fracture are high.I will update you further when we have news.Kind regards
Colin &#38; Debra]]></description>
					  <author>Colin Bailey</author>
					  <pubDate>Wed, 18 Mar 2009 00:00:00 CDT</pubDate>
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					  <title><![CDATA[Tilly]]></title>
					  <link>http://www.tillysappealfund.com</link>
					  <description><![CDATA[Just to let you know that Tilly is okay but struggling with pain in her hips.&#160; It is believed that this is being caused by arthritis which may have to be managed by way of steroid injections.We are communicating with the surgeon in the US to ask his opinions and recommendations.Tilly will be visiting the US again soon for another week of research, she is dreading it but we know how important it is for Tilly's future.Hope this message finds you well and thank you for reading about our beautiful daughter 'Tilly'.]]></description>
					  <author>Colin Bailey</author>
					  <pubDate>Mon, 09 Mar 2009 00:00:00 CDT</pubDate>
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					  <title><![CDATA[Photo&#39;s from the X-Factor]]></title>
					  <link>http://www.tillysappealfund.com</link>
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					  <author>Colin Bailey</author>
					  <pubDate>Thu, 11 Dec 2008 00:00:00 CST</pubDate>
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					  <title><![CDATA[X-Factor - Wow what a night!!!]]></title>
					  <link>http://www.tillysappealfund.com</link>
					  <description><![CDATA[Tilly was so happy through the whole show, whooping with delight throughout the live show!As the acts were waiting to go on stage, a number caught Tilly smiling and waving at them and they all smiled and waved back.During the show she met with Andy Abrahams, ex-X Factor contestant, who was lovely talking with Tilly and having a picture taken and signed her autograph book.&#160; Eoghan's father was sitting behind us and spoke with Tilly and promised that she could meet with Eoghan after the show, really nice guy.&#160; I spoke to the compare working between the breaks and he said he would see what he could do for Tilly to meet the judges after the show.&#160; After a bit of searching after the show, we found him and he took us through to the dressing room area and..............Louis Walsh spent time talking to Tilly and had a picture taken with Tilly and signed her book, he was lovely with her.Next, we entered the dressing room next door and Simon Cowell came straigh to Tilly and had a lovely chat with her, had picture with Tilly and signed her book:&#160; To Tilly, My New Best Friend!!!&#160; He was so nice to us and has asked me to call his assistant on Monday!In the VIP area we met and had pictures with:JLSEoghanRuthAlexandraDanielDianaSinitaA friend of mine who I called on the way knows JLS very well and so he called Ashton's dad to ask him to look out for Tilly.&#160; As we walked in the studio we met and he arranged for Tilly to meet the boys after the show!&#160; Tilly's favourite act!&#160; They went straight to Tilly and were lovely with her, as where all the family and friends of the boys!!!All the staff of the show treated Tilly so well and made it a night to remember for her, she is so happy and pleased.Thanks to all the kind staff that made it an unforgettable night for a beautiful young lady xI will post the pictures as soon as they are ready.]]></description>
					  <author>Colin Bailey</author>
					  <pubDate>Sat, 15 Nov 2008 00:00:00 CST</pubDate>
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					  <title><![CDATA[Tilly in the Sun Newspaper]]></title>
					  <link>http://www.tillysappealfund.com</link>
					  <description><![CDATA[Big thanks to both John &#38; Arthur&#160; xxxhttp://www.thesun.co.uk/sol/homepage/woman/real_life/article1819830.ece]]></description>
					  <author>Colin Bailey</author>
					  <pubDate>Sat, 18 Oct 2008 00:00:00 CDT</pubDate>
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