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						<title><![CDATA[Tillys Appeal Fund - News]]></title>
						<link>http://www.tillysappealfund.com</link>
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						<copyright><![CDATA[http://www.tillysappealfund.com]]></copyright>
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					  <title><![CDATA[Tilly&#39;s Progress 2]]></title>
					  <link>http://www.tillysappealfund.com</link>
					  <description><![CDATA[Apologies but we have been having problems with the website lately.Tilly has been home for some time now and is doing okay!&#160; She is attending her new school, The Endeavour, in Brentwood for half days and it's a wonderful place that she enjoys very much.Thanks to everyone who follows Tilly, greatly appreciated x]]></description>
					  <author>Colin Bailey</author>
					  <pubDate>Thu, 23 Feb 2012 00:00:00 CST</pubDate>
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					  <title><![CDATA[Tilly&#39;s Progress]]></title>
					  <link>http://www.tillysappealfund.com</link>
					  <description><![CDATA[Tilly has made remarkable progress over the past few weeks and came off PICU about 10 days ago.&#160; She is now on Penguin Ward and is undergoing re-habilitiation and physio with the possibility of getting back home in 3 weeks time.Many thanks for all your kind messages of support for Tilly.]]></description>
					  <author>Colin Bailey</author>
					  <pubDate>Fri, 12 Aug 2011 00:00:00 CDT</pubDate>
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					  <title><![CDATA[Tilly]]></title>
					  <link>http://www.tillysappealfund.com</link>
					  <description><![CDATA[Tilly suffered a heart attack on Sunday and is currently on Intensive Care at Great Ormond Street Hospital.

We were told on Sunday night to fear the worst outcome within the following 12 hour period, but Tilly is fighting as she always has done so please keep preying for our beautiful daughter.

A long way to go and she is still ventilated and various drugs are keeping her going but a glimmer of hope is a big step from previous days of this week.]]></description>
					  <author>Colin Bailey</author>
					  <pubDate>Thu, 07 Jul 2011 00:00:00 CDT</pubDate>
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					  <title><![CDATA[Tilly Hospitalised]]></title>
					  <link>http://www.tillysappealfund.com</link>
					  <description><![CDATA[
Tilly was rushed to Great Ormond Street on the weekend and is in a serious condition.&#160;&#160; There are a number of complications including pneumonia and she is on permanent oxygen supply and being monitored very closely by a large number of Teams.&#160; This is a very difficult period.]]></description>
					  <author>Colin Bailey</author>
					  <pubDate>Tue, 28 Jun 2011 00:00:00 CDT</pubDate>
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					  <title><![CDATA[Tilly&#39;s Health]]></title>
					  <link>http://www.tillysappealfund.com</link>
					  <description><![CDATA[
Due to pneumonia being missed as diagnosis in the UK, despite 2 visits to doctors and being told it's a sore throat!, Tilly's one week trip for treatment at the NIH in Washington DC&#160;turned into&#160;a month!!!
Tilly started a new medication, but we had to wait for the pneumonia to clear before the infusion, and we are now hoping for some upward movement in both pain and mobility.In addition, it is now believed that Tilly has a totally unique condition, a one off, and we will know more hopefully in 6 months following genetic testing at the NIH.Tilly is now&#160;struggling with:Cannot lift her arms above waist levelNeck pain due to curving of the spineLeft hip completely out of the socket againStruggling to grip items or for prolonged periodsCondition attacking various parts of the bodyThe need to attend the NIH is increasing and we will need to go back within 6 months.&#160; Not good times for Tilly and difficult to watch as loving parents.The need for fundraising to ensure we can take Tilly to the NIH is more evident than ever so any help with ideas will be greatly appreciated.Take care and thanks for reading about my beautiful daughters struggle with life.
&#160;
&#160;]]></description>
					  <author>Colin Bailey</author>
					  <pubDate>Sun, 24 Apr 2011 00:00:00 CDT</pubDate>
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					  <title><![CDATA[Tilly Update]]></title>
					  <link>http://www.tillysappealfund.com</link>
					  <description><![CDATA[
The past few months have seen a big downturn in Tilly's health.&#160; She is struggling physically with&#160;a lot of pain and her spirit has been affected which is worrying to us all.&#160; Her left hip has come completely back out of the socket and she struggles to even sit up by herself.We are due back in DC shortly and hope to find ways to help Tilly and also anticipate more regular trips to the US in the near future.We need to raise funds to enable this to happen so any help would be greatly appreciated.Thanks and regardsColin]]></description>
					  <author>Colin Bailey</author>
					  <pubDate>Tue, 22 Mar 2011 00:00:00 CDT</pubDate>
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					  <title><![CDATA[Tilly has Surgery ]]></title>
					  <link>http://www.tillysappealfund.com</link>
					  <description><![CDATA[Tilly had surgery at Great Ormond Street Hospital in London yesterday.&#160; The surgery was based upon trying to straighten her thumb which has been ravaged by the condition and has been in a permanent angled position for some time now.&#160; She had two narrow pins inserted and a slight cut internally inside the thumb to aid movement.She is doing well and remains in good spirits,&#160;which is so typical of Tilly.]]></description>
					  <author>Colin Bailey</author>
					  <pubDate>Wed, 21 Jul 2010 00:00:00 CDT</pubDate>
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					  <title><![CDATA[What a night!!!]]></title>
					  <link>http://www.tillysappealfund.com</link>
					  <description><![CDATA[
We sat 4-5 seats to the left of Simon Cowell and Oliver was next to Sinita, who chatted to him during the night and was lovely with him.&#160; Simon spotted Tilly as the judges came out at the beginning of the show and he acknowledged her waving to him.&#160; During the intervals Simon twice came over and talked, hugged and kissed Tilly.&#160; He is such a nice and genuine person, one in a million.During the show Dermott O'Leary came over to hug Tilly and to chat with her.&#160; He told her that Tilly had made his night and he was now happy.&#160; After the show Simon's staff escorted us through to the dressing room areas where we met Cheryl Cole, who was lovely and had pictures with Oliver, Tilly and ..........Me (sorry but).&#160; JLS spotted Tilly and made a huge fuss and posing for pictures with us all.&#160; We also met with the parents of JLS again and they were lovely with Tilly.Both Oliver and Tilly were fast asleep after about 10 minutes of being in the car and are now having very sweet dreams.Big thanks once again to Simon Cowell and his Team for another unforgettable experience xColinps - I will post pictures of the night at the end of the week.]]></description>
					  <author>Colin Bailey</author>
					  <pubDate>Sun, 01 Nov 2009 00:00:00 CDT</pubDate>
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					  <title><![CDATA[PLEASE READ - X FACTOR SHOW THIS SUNDAY]]></title>
					  <link>http://www.tillysappealfund.com</link>
					  <description><![CDATA[
Tilly's 12th birthday and JLS appearing on the X Factor this coming weekend prompted me to call Simon Cowells PA this week.&#160; I was asking a lot really, given that Simon and Max Clifford were so kind last year to arrange for such a wonderful evening for Tilly last year and the subsequent kind donation from Simon.&#160; Also, we are not the only cases and I know that both Simon and Max continuosly work hard for so many good causes but I am Tilly's dad and want good things for such a brave daughter.&#160; Tilly was at GOSH yesterday again, monthly infusion this time which she hates, and had a rough time.Simon's wonderful PA helped me to make Tilly's day, month, year by arranging not only for tickets for this Sundays live show but for Tilly to hopefully meet with JLS and Cheryl Cole!!!&#160; and I hope Simon as both Tilly and I think he is a wonderful man and want to thank him again.I cant tell you how happy Tilly is, she has not stopped texting me all day which has made me so happy for her.I hope to post a story and pictures after Sunday as it will be an unforgetable experience for Tilly, again!!!]]></description>
					  <author>Colin Bailey</author>
					  <pubDate>Thu, 29 Oct 2009 00:00:00 CDT</pubDate>
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					  <title><![CDATA[Genuine Friends - Please Read]]></title>
					  <link>http://www.tillysappealfund.com</link>
					  <description><![CDATA[My best friend at school, Damien Stevenson (see above), I had lost touch with some 15 years ago.&#160; He moved back to Bristol some 20 years ago and the last time, until recently, I saw him was at his wedding.Damien decided to search for me through Facebook about 6 months ago and we made contact.&#160; We had a lot to catch up on, Damien has a lovely wife and two wonderful sons of 13 &#38; 15.&#160; I obviously told him about Oliver and Tilly and he looked at the website to find out more.&#160; I went to stay with his family whilst on business in Bristol and we had a great time catching up and I could sense that he was touched by Tilly's difficult life.&#160; Damien called me tonight and informed me that he trained for 5 months and recently ran 13 miles in Bristol for Tilly's fund!&#160;&#160; Damien has not exercised for 15 years+ but was so touched by Tilly that he said 'I had to do something, especially given our friendship and for such an incredible child'.Damien and his family rallied round friends and colleagues and have helped to raise an amazing &#163;1100 for the fund!!!I am so grateful and blown away by Damien and his family for doing this for Tilly and I cannot thank you all enough.Love Colin ]]></description>
					  <author>Colin Bailey</author>
					  <pubDate>Fri, 25 Sep 2009 00:00:00 CDT</pubDate>
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